HAPPY 6TH BIRTHDAY ARIANNA!!

How time flys by. My sweet baby girl is growing up so fast. She is now 6 years old and she said good-bye to being 5. She is doing very well, I am so proud of her. She is a very strong girl. She has over come so many things in her life, I am thankful to have her here.

Here Arianna is celebrating her bday with her classmate. Sharing yummy cupcakes.

She is doing so well in school. Arianna is like a sponge, everyday she comes home excited to share with me what she has done or learned. She loves school, Arianna evens wants to go to school during the weekends. She is crazy about school. Health wise she is doing well, trying to avoid sick classmate is hard.

She had a wonderful bday party with family and friends. She enjoyed her special day:

Make a wish, may your birthday wish come true!

Happy Birthday, and many more to come....................

What a month this has been.....

Arianna has gotten sick again, this time it has been harder to get rid of. Her Doctor added some new med's and to boost up her lungs she was given steroids. Oh boy, here we go with the roid rage. Arianna's attitude and emotion change when she is on steroids. Today she went from yelling to crying to yelling to crying in minutes. Can't blame her, it just the side effects from the steroids, she will return to normal soon.

School is going to start a few weeks, getting nervous. I already feel my anxiety kicking in. It will be hard to part from her, I have never left Arianna side since she has gotten her trach ( last week was her 3 years anniversary, with her best friend trach). She calls her trach "my best friend", she says she can't live without it and it will always be with her forever. She amazes me everyday, I thank God every night for giving me another blessed day with my Princess. I just pray that she will stay healthy during school. I know she will love school and make lots of friends. Good thing we just live a few blocks from the school, in case of emergency.

It's getting close to that time of year, "MDA Labor Day Telethon", making arrangements for many MDA events to kick off the telethon. Arianna love going out to these events, she loves meeting me people and telling about her journey, what MDA does for her.

We had the our family photos taken: all thanks to Make-A-Wish family day, all photos place onto a cd for us to take home to have print out.

Arianna was also working on deciding her Make-A-Wish, she waited to see the Jonas Brothers in concert and meet them, but it turn out that there are many other wish kids that want too. So she is still on a search to picking other wish.

Follow along next month: I will blog about Arianna first day in kinder.

Loving Life.........

This is what I walk into, a blue smurf, after I leave Arianna with the nurse for an hour. And I didn't even leave home, I was just doing housework for an hour and peek into her room and all I see is blue ink all over her mouth. My question is why did she (nurse) let Arianna do this? Gave Arianna a stamp to play with, without any paper. I was upset for a few a minutes but, realize Arianna was upset too because so I had to laugh is off. Once, the nurse left I had to let off some steam. Why can't I find a "great" nurse. On to search for a new nursing agency.

Happy 4th of July.....

Daddy's girls...doing what daddy loves, watching t.v.

Daddy trying to hang on the both girls....Arianna is getting so long... Serena is growing so fast...

Transition stage....What's next?

It's official as of today....Arianna is NOW in transition out of DDD services....She is only qualify for ALTCS...Now it's time, to find new providers..In many ways it a good thing / a not so good thing that she transitioning out of DDD. Now need to learn a whole new system/agency for her up coming new service program. Hopefully, Arianna will still have access to the same services that DDD offered. In time, we will see.

Monday, Arianna's Bronc scope surgery: I am proud of Arianna she did really well. Only shed a few tears. To many surgery's in the past that I thinks she knows the routine by now. She was very cranky coming out of surgery. Arianna didn't want anyone to touch her. By mid-morning she was doing much better. She was able to come home the same day. The doctor gave us some photos to add to her scrapbook. It is amazing what they can see through a small camera down the trachea. Arianna's current trach was to small of a sizes, so it's time to up size to a bigger trach tube to solve the problem. She is loving her new size...She now calls her trach "my best friend".



Arianna with Grandma and Chanelle June 29, 2009

Arianna and her big sister/cousin Chanelle

Arianna in lovely surgery outfit: pj's and cap

I was inspired by Arianna being so brave during surgery, I did a craft project for her and Serena.
(children photo collage/children hanger)




Serena is doing great and meeting all her milestones: she is starting to sit up by herself.

Getting ready to enjoy a quite 4th of July and a yummy BBQ.

Let's see what is instore for next week.

HOT, HOT , HOT

What to do in this hot weather...besides Arianna's fav AZ Mills Mall. One new thing we tried out was going swimming. It is such a challenge taking Arianna swimming, she is getting so big and heavy that it's getting hard to pick her up and harder when she is wet. She doesn't fit into a baby pool anymore, so I place her on her bath chair in the big pool and it work out great. She was loving every minute of it. I also got Serena into the pool, she had fun too. I have now found out that taking her swimming, she will take a much needed nap for many hours afterward. I am going to have to do this more often. (Serena stop taking nap during the day since she was 3 months old, I ask the doctor what is wrong with this baby, she doesn't nap.) How can this baby not take nap, because I know that I can sure need on during the day. Serena is our "Monster baby" she is totally different than Arianna. Serena is just a little ball of engery....she just keeps going and going...

Arianna's news: what's up ahead for next week:
Arianna will be have a bronc scope this coming Monday, hopefully she will not have to stay long in the hospital. I am keeping my fingers cross, hope this help ease the pain when changing out her trach every week. She is disliking trach change day, Arianna works herself up, have panic attack, throws up...ugh what a mess. I am getting to dislike these days too. We were both doing well with trach change but every since the need to increase the size, I am having trouble placing it back in. I think is just some scare tissuse building up that need clean up.. I think I am more nervous than Arianna is. Now that she is on the ventilator we have to more carefull with putting her under during sugery's. Keep Arianna in your prayers that all goes well.

What's up ahead for next week:

Have a busy week ahead, lots of calls to make. Arianna will be push off DDD services, since she doesn't quailfy any more. Have to choose a new health plan with ALTCS, new case manager, and who knows what else. I thought I had untill she was 6 years old, which is only 3 month away but received a phone call today that she now off DDD. This transitions is not going smooth, as I was told it would but what is new. Nothing happens the way they say it will.

Looks like I have lots of work to do next week, need to get ahead start on it....

my girls

Make a Smilebox scrapbook

Another day!

It's another day with high ozone, which means Arianna will have to stay indoors. We just hate these kind of days, but it better to play it safe and stay indoors than be sorry and deal with being sick. We have been through 2 months of sick plan treatments due to having pneumonia in April and now back to our original plans (svn treatments). Have to keep her lung strong and healthy, we are schedule for a Bronc scope at the end of June. Arianna's ENT doctor needs to take a look inside her trachea to see what is cause the resistance I feel when changing her trach. It could be cause by some scare tissue that needs to be clean out. Hopefully that what it is.

Now that the hot summer heat is here, I have to think of were to take Arianna out in the community (indoors) to get practice in her power chair. She used to practice outside our home when the weather was cooler. Took her this week to the mall for 5 hours, she wore me out. If she could have it her way she will be there from sunrise to sunset. She just love being more independent. Every time we go out, it brings on happy tears. I am so thankful for our new modify van, that was donated to Arianna. Without this van we will not be able to take her power chair anywhere. I feel very bless to have been given this wonderful gift. Arianna is such a special little girl.

This is my first post, I have been trying to finish setting up this blog about Arianna but life is just so busy and I am finally getting the hang of how this works. Still learning...