What a month this has been.....

Arianna has gotten sick again, this time it has been harder to get rid of. Her Doctor added some new med's and to boost up her lungs she was given steroids. Oh boy, here we go with the roid rage. Arianna's attitude and emotion change when she is on steroids. Today she went from yelling to crying to yelling to crying in minutes. Can't blame her, it just the side effects from the steroids, she will return to normal soon.

School is going to start a few weeks, getting nervous. I already feel my anxiety kicking in. It will be hard to part from her, I have never left Arianna side since she has gotten her trach ( last week was her 3 years anniversary, with her best friend trach). She calls her trach "my best friend", she says she can't live without it and it will always be with her forever. She amazes me everyday, I thank God every night for giving me another blessed day with my Princess. I just pray that she will stay healthy during school. I know she will love school and make lots of friends. Good thing we just live a few blocks from the school, in case of emergency.

It's getting close to that time of year, "MDA Labor Day Telethon", making arrangements for many MDA events to kick off the telethon. Arianna love going out to these events, she loves meeting me people and telling about her journey, what MDA does for her.

We had the our family photos taken: all thanks to Make-A-Wish family day, all photos place onto a cd for us to take home to have print out.

Arianna was also working on deciding her Make-A-Wish, she waited to see the Jonas Brothers in concert and meet them, but it turn out that there are many other wish kids that want too. So she is still on a search to picking other wish.

Follow along next month: I will blog about Arianna first day in kinder.

Loving Life.........

This is what I walk into, a blue smurf, after I leave Arianna with the nurse for an hour. And I didn't even leave home, I was just doing housework for an hour and peek into her room and all I see is blue ink all over her mouth. My question is why did she (nurse) let Arianna do this? Gave Arianna a stamp to play with, without any paper. I was upset for a few a minutes but, realize Arianna was upset too because so I had to laugh is off. Once, the nurse left I had to let off some steam. Why can't I find a "great" nurse. On to search for a new nursing agency.

Happy 4th of July.....

Daddy's girls...doing what daddy loves, watching t.v.

Daddy trying to hang on the both girls....Arianna is getting so long... Serena is growing so fast...

Transition stage....What's next?

It's official as of today....Arianna is NOW in transition out of DDD services....She is only qualify for ALTCS...Now it's time, to find new providers..In many ways it a good thing / a not so good thing that she transitioning out of DDD. Now need to learn a whole new system/agency for her up coming new service program. Hopefully, Arianna will still have access to the same services that DDD offered. In time, we will see.

Monday, Arianna's Bronc scope surgery: I am proud of Arianna she did really well. Only shed a few tears. To many surgery's in the past that I thinks she knows the routine by now. She was very cranky coming out of surgery. Arianna didn't want anyone to touch her. By mid-morning she was doing much better. She was able to come home the same day. The doctor gave us some photos to add to her scrapbook. It is amazing what they can see through a small camera down the trachea. Arianna's current trach was to small of a sizes, so it's time to up size to a bigger trach tube to solve the problem. She is loving her new size...She now calls her trach "my best friend".



Arianna with Grandma and Chanelle June 29, 2009

Arianna and her big sister/cousin Chanelle

Arianna in lovely surgery outfit: pj's and cap

I was inspired by Arianna being so brave during surgery, I did a craft project for her and Serena.
(children photo collage/children hanger)




Serena is doing great and meeting all her milestones: she is starting to sit up by herself.

Getting ready to enjoy a quite 4th of July and a yummy BBQ.

Let's see what is instore for next week.