HOT, HOT , HOT

What to do in this hot weather...besides Arianna's fav AZ Mills Mall. One new thing we tried out was going swimming. It is such a challenge taking Arianna swimming, she is getting so big and heavy that it's getting hard to pick her up and harder when she is wet. She doesn't fit into a baby pool anymore, so I place her on her bath chair in the big pool and it work out great. She was loving every minute of it. I also got Serena into the pool, she had fun too. I have now found out that taking her swimming, she will take a much needed nap for many hours afterward. I am going to have to do this more often. (Serena stop taking nap during the day since she was 3 months old, I ask the doctor what is wrong with this baby, she doesn't nap.) How can this baby not take nap, because I know that I can sure need on during the day. Serena is our "Monster baby" she is totally different than Arianna. Serena is just a little ball of engery....she just keeps going and going...

Arianna's news: what's up ahead for next week:
Arianna will be have a bronc scope this coming Monday, hopefully she will not have to stay long in the hospital. I am keeping my fingers cross, hope this help ease the pain when changing out her trach every week. She is disliking trach change day, Arianna works herself up, have panic attack, throws up...ugh what a mess. I am getting to dislike these days too. We were both doing well with trach change but every since the need to increase the size, I am having trouble placing it back in. I think is just some scare tissuse building up that need clean up.. I think I am more nervous than Arianna is. Now that she is on the ventilator we have to more carefull with putting her under during sugery's. Keep Arianna in your prayers that all goes well.

What's up ahead for next week:

Have a busy week ahead, lots of calls to make. Arianna will be push off DDD services, since she doesn't quailfy any more. Have to choose a new health plan with ALTCS, new case manager, and who knows what else. I thought I had untill she was 6 years old, which is only 3 month away but received a phone call today that she now off DDD. This transitions is not going smooth, as I was told it would but what is new. Nothing happens the way they say it will.

Looks like I have lots of work to do next week, need to get ahead start on it....

my girls

Make a Smilebox scrapbook

Another day!

It's another day with high ozone, which means Arianna will have to stay indoors. We just hate these kind of days, but it better to play it safe and stay indoors than be sorry and deal with being sick. We have been through 2 months of sick plan treatments due to having pneumonia in April and now back to our original plans (svn treatments). Have to keep her lung strong and healthy, we are schedule for a Bronc scope at the end of June. Arianna's ENT doctor needs to take a look inside her trachea to see what is cause the resistance I feel when changing her trach. It could be cause by some scare tissue that needs to be clean out. Hopefully that what it is.

Now that the hot summer heat is here, I have to think of were to take Arianna out in the community (indoors) to get practice in her power chair. She used to practice outside our home when the weather was cooler. Took her this week to the mall for 5 hours, she wore me out. If she could have it her way she will be there from sunrise to sunset. She just love being more independent. Every time we go out, it brings on happy tears. I am so thankful for our new modify van, that was donated to Arianna. Without this van we will not be able to take her power chair anywhere. I feel very bless to have been given this wonderful gift. Arianna is such a special little girl.

This is my first post, I have been trying to finish setting up this blog about Arianna but life is just so busy and I am finally getting the hang of how this works. Still learning...